13 Sep This Little Girl’s Condition Is So Rare That Doctors Are Still Struggling To Diagnose It

We live in a world of people who incessantly complain about things they can’t change. The things we complain about tend to be trivial things which, in the grand scheme of things, shouldn’t really affect our happiness or well-being.

And I’m definitely one these people who sweats the small stuff. I’m always moaning about things that really aren’t worth spending any time on. I know deep down, however, that I’m pretty lucky.

Having lived a perfectly “normal” life, I could never begin to imagine what it must be like living with a rare medical condition which affects my physical health, the way I think, the way I communicate and the way I appear physically.

Well, that’s exactly what a nine-year-old girl by the name of Katie Renfroe from Florida is suffering from. When Katie was born, she was diagnosed with megalencephaly, which is a growth development disorder whereby the brain has overgrown tremendously in the womb.

While doctors are certain that Katie has megalencephaly, the condition doesn’t account for Katie’s other symptoms. In fact, they maintain that whatever condition Katie has is so rare and under-researched that they are unable to name it.

Katie’s mother, Angie Renfroe, has been forced to watch her daughter grow up with such a debilitating condition, knowing that doctors may never be able to give her the answers to so many of her questions. Mainly, if there is any chance her daughter can be cured.

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